My walk through life with Fibromyalgia.
From the brink of despair to feeling human again. Determination, hard work, persistence, and lots of love and support from those closest to me.
Join me as I look back at how far I have come
in my quest to feel normal.

Tuesday, June 14, 2011

Who says you can't run when you have Fibromyalgia?

Dancing the Happy Dance with Sister in Law Tessa
Jennifer and myself waiting for the start of our race.

This says it all.


So I started running...yes you can run when you have Fibromyalgia. I have had people say " Oh I was told you can't run when you have fibro" Well doctors have told me I can't do a lot of things that I do.  Who are they to determine what we can and can't do.  I am the navigator of my life and I will try everything I want to try go where I want to go and be WHO I want to be and bring a victim of this disorder is not what I want to be.
To prepare for running I actually did a 5K in April for the National Multiple Scoliosis Association (MS Walk).  This is was the 5th year for and my 3rd as a team captain.  My team was small consisting of 5 people. Together we raised over $500.  During this event I only ran for about 3 minutes.  But I was inspired to run more.  I started training for a jogging event by going around my block alternating walking and jogging.  I start out jogging for about 3 minutes and then alternate walking and jogging for the remainder of the time.  I am able to make it around the block in 5 1/2 minutes. Not to bad since the block is 1/2 a mile around.
 My next event was a benefit for a fallen soldier.  This was a 5K that was on a route that the fallen soldier use to run when he was home on leave.  This one I power walked with my dear friend Sandra and we finished in 49 minutes.
This weekend I walk/jogged in an official 5K with my sister in law's Jennifer and Tessa.  Tessa has been doing 10K's and 1/2 Marathons since the beginning of the year and like myself this was Jennifer's first race. I did a lot better then I thought I would.  I started out great, paced myself and ended up finishing 22 out of 33 for my age group of 40-44.  I used the GPS on my phone along with iMap My Run Program.  I did it in 38.21 min at a pace of 11.48.
I am so happy I did this run.  I was a little sore later that day  and my feet are sore even now
days later but it was well worth it.!  I have already signed up for my next 5k and I am contemplation joining a running club so I have people to inspire me to run on a consistent basis.





Monday, June 6, 2011

Doctors Visit...Questions

So today I have a visit with my rheumatologist.  I have been experience a loss of memory...really loss of skills.  I have be unable to perform some tasks that I use to know.  It really showed up during the last month of my math class. I knew the material but failed one of my mid terms.  Is it due to stress?, Side effects of a medication? Or something new altogether? I don't know but it is worrying me.  If it is something I have to really think about to do, I am having a hard time. Well hopefully talking to Dr. Silverman will give me some in site as to what is going on.
Well I hope everyone has a great day and (((Gentle Hugs))))
♥ Debbee

Thursday, June 2, 2011

What is the one thing you had to give up since Fibromyalgia?

The one thing that I have had to give up since having been affected by fibromyalgia was....who am I kidding?  I have had to give up so much. My career, my dirt bike, friend, high heeled shoes...oh I miss high heel shoe.  I us to wear them to work at the salon and feel fine at the end of the day.  Since Fibro I have not been able to wear them without paying for it with in an hour or two.  The sore legs, the lower back pain, the hip pain.  It just sucks. I have now been relegated to wearing flats.  At first it was really hard because I love shoes (check out my other blog) and I did not have many choices.  Well that has been a few years so now I am loving it because there are so many cute flats now.  So tell me what you gave up that really turned out not so bad.


Wednesday, May 4, 2011

Fibromyalgia: A brief summary from a patient

I had to do a health report for one of my classes and what better subject then Fibromyalgia.  I took some of the information from the two books listed at the bottom of this posting and some of the information is from experience.  I hope you enjoy reading this no nonsense summary of what fibromyalgia is to me. 
Fibromyalgia: from the Latin word fibro (fibrous tissues), my (muscles) and algia (pain), it is a chronic syndrome that affects approximately 4 percent of the population with 3.4 percent being women. This disorder affects a person’s muscles and soft tissue and almost always is accompanied by sever fatigue.  The cause is unknown but thought to because by stress, sleep disorders, trauma and possibly a change in hormones.  Unlike multiple sclerosis or rheumatoid arthritis, fibromyalgia is not progressive.  A progressive disease continues to get worse and can be fatal.  Fibromyalgia is for life and has periods of remission and flare-ups that vary in length and severity. This cycle keeps a person diagnosed with fibromyalgia in a constant state of waiting, waiting to feel better and waiting for the next flare-up to come. A person who is eventually diagnosed as having fibromyalgia may have started out by having by an episode amplified pain.  Maybe they had a minor surgery or injury but the pain is a hundred times worse than it should be. For the person without fibromyalgia the pain may be intense for a few days, maximum, but a person who is experiencing intense pain past that may be suffering from something other than a normal pain.  Along with this amplified pain comes a host of other ailments.  The best way to deal with this disorder is to be under the care physician of a qualified physician who understands the fibromyalgia patient.


What: Fibromyalgia is characterized by wide spread musculoskeletal pain, aching, and stiffness associated with sleep disturbances and fatigue. Fibromyalgia strikes people in all age ranges from young children to the elderly. Most people develop it in their 30’s and 40’s.

Why: Research on the brain inconclusively discovered that people with fibromyalgia have lower levels of important neurochemicals in the brain that effect how the brain processes things.  These include:
~Serotonin, a chemical messenger that plays a part in feelings of well-being, modulating pain and promoting deep sleep.
~Norepinephrine, dopamine and cortisol, important stress relieving hormones
.~phosphocreatine and adenosine triphosphate (ATP) which regulates calcium in muscle cells need to contract and relax.

Symptoms:
Main: Muscle pain, Tender Points and Sleep Disturbance.

Other Symptoms Associated with Fibromyalgia includes:
Fatigue, /Chronic Fatigue Syndrome, Joint Pain, TMJ, Headaches/Migraines, Irritable Bowel/Bladder Syndrome, Cognitive Impairments/Memory Problems, Restless Leg Syndrome and other sleep disorders that do not let your body get restorative sleep.  Raynaud’s Phenomenon, Carpel Tunnel Syndrome, Mitro Valve Prolapse, depression/anxiety and panic disorders. Also includes wide spread pain above and below the waist on both sides of the body.

Diagnosis: Ruling out other conditions.
The doctor needs to rule out other problems and/or diseases such as rheumatoid arthritis, lupus, reflex sympathy dystrophy, multiple sclerosis, and other arthritic conditions. They also need to rule out perpetuating factors such as growth hormone deficiency, hypomagnesaemia, thyroid dysfunction, vitamin deficiency, or infections such as Lyme disease or the Epstein Barr virus.
No blood test exists for fibromyalgia but excluding other conditions is important.  To proceed with a fibromyalgia diagnosis, a history of at least 3 months of widespread pain must be present. A joint and muscle examination, a neurological examination and a tender point examination test will be done. During diagnosis, your doctor will palpitate eighteen areas ranging from your neck down to your knees f testing for pain. If eleven of the eighteen points are painful (not tender) the diagnosis of fibromyalgia will be made.

Treatment: So Now What
Once diagnosis is made you can start moving forward.  You can successfully live with fibromyalgia if you manage it properly. Your doctor may prescribe medication for you to take. There are several medications on the market approved for fibromyalgia such as Cymbalta, Lyrica, Savella.  These are medications that ease pain by working on the brains chemistry.  Your doctor may also put you on an antidepressant or a mood stabilizer to help with depression and feels of hopelessness.  To also deal with your pain they may prescribe Ibuprophen or Vicodine for depending on the level.   

Lifestyle Change: Now it’s up To You.
Now is the time to make some significant changes in your life.  There are professional that can help you alter your life style so you can better manage your symptoms.
Occupational Therapy:
An occupational therapist can help you modify how you do things, sleep better, work more efficiently and have better quality of life.  They are educated in getting people going to live a full life again.
Physical Therapist:
A physical therapist will teach you how to exercise in such a way to keep your pain at a minimum while you are getting the benefit of exercising. When you have fibromyalgia the worst thing you can do is lay in bed.  Physical activity is good for your body and your spirit.
Therapist/Psychologist:
Seeing a therapist who understands what it is like to have fibromyalgia is very important. Fibromyalgia is sometimes difficult to explain and some people have a hard time understanding that it is real. 
Stress Management and Relaxation:
In order to keep your fibromyalgia in check you need to be as free of stress as possible. Chronic stress can lead to a significant flare. Eliminating anything from your life that you consider stressful will be benefit to your health.

Bibliography:
Online Sources:
Web MD Internet Site
Fibromyalgia Health Center romyalgia Health Center
Hard Bound Resources
Taking Charge of Fibromyalgia: Everything You Need To Know to Manage Fibromyalgia. By Julie Kelly, M.S., R.N. and Rosalie Devonshire, M.S.W., LCSW Fifth Edition Published by Fibromyalgia Education Systems, Inc. 1991-2005
The Complete Idiots Guide To Fibromyalgia, Second Edition By Lynne Matallana with Laurence A. Bradley, Ph.D. Published by Alpha, A member of Penguin Group(USA) Inc. 2009
Additional Source:
Debbee Finney, I have fibromyalgia.  I was diagnosed in 2004 and have been to doctors that think I am lying, I’m a hypochondriac and I have mental problems.  Fibromyalgia has a huge psychological component when it comes to the support you get.  I was fortunate enough to find a doctor in 2009 that changed the way I deal with my illness.  I went through a Rehabilitation program at Cedar Sinai in Los Angeles in 2010 and have been doing very well with the lifestyle changes I have made. Some of the information in my report comes from my experience as a patient. 

Tuesday, April 26, 2011

What a Difference a Bed Makes.



So in June of 2007 I cut back my hours behind the stylist chair for a more body friendly job.  Sitting behind a desk.  I started to work part time at a attorney services company.  I love this job, so much that by October of that year I was begging to have a full time position and they gave it to me. Shortly after going full time I had a set back having to do with the stress of my son going into the Army and possible deployment to Iraq. The stress had cause me to experience such sever pain in my lower back and hips that I was walking with a cane for a couple of weeks.  I finally got relief for ibuprofen and Soma. They worked wonders but I had to get to the bottom of why I was now having the hip pain.  I saw a chiropractor and received a few adjustment when it was discovered that my hips were out of alignment.  Think, Think, Think what could be causing this to happen.  Yes I know that I have Fibro...I was not ignoring that fact, but how did my hips become so far out of whack.  I only thing I could think of causing it was my bed.  Now my mattress was only about 4 years old so could it be the culprit? With much prodding on my part and the fact that it was tax season, I convinced my husband to let "us" get a new bed   The bed I wanted to try was a memory foam mattress, no springs and no wood. After I tried it out in the showroom for about 30 minutes I was willing to give it a try.  Now I bought a knockoff but I do not know if there would have been a difference except for the price. We paid about $800 for bed, box spring and frame.  From the moment I started sleep on it I know that this was the best $800 we ever spent.  Within a week my hip pain has dissipated. What a happy girl I am!! Now these mattress are not for everyone. I tend to like a really firm mattress so I has been a god send for me but hubby on the other hand hates it.  Remember "The Princess and the Pea"?  I think that is him.
Not my bedroom but I can dream.
From then, which was April 2008, I was pretty much under control with my pain issues.  It did help that the lord looked down on me and saw what I was already going through and had the mercy to see that my son be sent back home to me.  By June he and his fiancĂ©e were back home and all was well on the home front for a while.

Thursday, April 7, 2011

Moving on...

So that was a traumatic experience...so sad it had to come to that for me to get someone in the medical field to actual listen to me. I now started on a journey of therapy and psychiatric sessions.  New medication...less stress that was the plan.  Not more as in quantity but different functioning medication. I resumed my part-time position behind the chair armed with tools to help me work more efficiently. A step to raise one leg up on to relieve the pressure on my back, only one weave a day, no more then 2 appointments in a row. I was trying with all my might to act normal, like I did not have this horrible thing that nobody believed in.  I found doctors but the people around me were still a little questioning, not so understanding.
I needed to change. Something. A phone call one day was just what I needed...a different job.

Saturday, February 12, 2011

I'll be back

Getting into the swing of things with the new semester at school so I will post a new chapter tomorrow.
♥Debbee