My walk through life with Fibromyalgia.
From the brink of despair to feeling human again. Determination, hard work, persistence, and lots of love and support from those closest to me.
Join me as I look back at how far I have come
in my quest to feel normal.

Tuesday, January 25, 2011

Trying to find sleep.

After my diagnosis I was sent to have multiple sleep studies done since the lack of sleep is a big component of Fibromyalgia.  Turns out I suffer from Periodic Limb Movement.  The movement of my body was waking me up then 85 times an hour...no wonder was exhausted. Now it was time to experiment  with multiple sleep aids...I can not remember them all but I do remember that I was put on experimental fibro drug controversialists past, The doctor prescribed me Xyrem. This is the same thing a GHB, the date rape drug.  It is the most controlled substance anyone can be prescribed. It was a salty liquid so I had to drink it with something sour like lemonade just to get it down. I did that for a month without a positive result. In the end it was not the sleep aid for me. I was eventually put on a medication for Parkinson Disease (Mirapex) Amazingly it did help with the movement but I still was exhausted. I could sleep but it was not the restorative sleep I now know that I needed. I found myself still sleeping a majority of the day so I could act like I was a normal person when my husband and teenager came home. I would go to work at the salon when I absolutely had to.  My rheumatolgist did not do much in the way of helping me feel better and he was all the way in Santa Barbara.  So now I had a new mission...find a doctor that could help me get my old life back...and this was just the first 12 months after diagnosis, Fall 2005.

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